Tag: rare diseases

Rare Diseases: Addressing the Challenges in Diagnosis, Drug Approval, and Patient Access

Value in Health Themed Section Offers Updated Global Perspective Lawrenceville, NJ, USA—May 16, 2018—Value in Health, the official journal of ISPOR (the professional society for health economics and outcomes research), announced today the publication of a series of articles offering

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ISPOR 19TH ANNUAL EUROPEAN CONGRESS EXAMINES VALUE ASSESSMENT OF TRANSFORMATIVE MEDICINES IN RARE DISEASES

Vienna, Austria—1 November 2016—The International Society for Pharmacoeconomics and Outcomes Research (ISPOR) offered a thought-provoking issue panel, Valuing Transformative Medicines in Rare Diseases: Methods and Madness, at the Society’s 19th Annual European Congress in Vienna, Austria. Paul Hodgkins, PhD, Vice

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STUDY REVEALS SIGNIFICANT GLOBAL VARIATION IN THE DEFINITION OF THE TERM “RARE DISEASE”

First International Study of Its Kind Published in ISPOR’s Value in Health  Princeton, NJ—October 26, 2015—The International Society for Pharmacoeconomics and Outcomes Research (ISPOR) published results of an expansive global review answering a basic scientific question, “How do you describe

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Valuing Rare Disease Medicines – We Can Do Better

London, United Kingdom – Many rare diseases, often severe and life-threatening, cannot be treated. The small numbers of patients affected make it time-consuming and costly to compile evidence about treatments. Organisations that pay for health care recognise that a special approach

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