Tag: rare disease

Rare Diseases: Addressing the Challenges in Diagnosis, Drug Approval, and Patient Access

Value in Health Themed Section Offers Updated Global Perspective Lawrenceville, NJ, USA—May 16, 2018—Value in Health, the official journal of ISPOR (the professional society for health economics and outcomes research), announced today the publication of a series of articles offering

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ISPOR 19TH ANNUAL EUROPEAN CONGRESS EXAMINES VALUE ASSESSMENT OF TRANSFORMATIVE MEDICINES IN RARE DISEASES

Vienna, Austria—1 November 2016—The International Society for Pharmacoeconomics and Outcomes Research (ISPOR) offered a thought-provoking issue panel, Valuing Transformative Medicines in Rare Diseases: Methods and Madness, at the Society’s 19th Annual European Congress in Vienna, Austria. Paul Hodgkins, PhD, Vice

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ISPOR 19TH ANNUAL EUROPEAN CONGRESS EXPLORES HOW HTA BODIES CAN CONSIDER THE VOICE OF PATIENTS WITH RARE DISEASES

Vienna, Austria—31 October 2016—The International Society for Pharmacoeconomics and Outcomes Research (ISPOR)  led an interesting discussion session this afternoon entitled, From Testimonials to Qualitative Research Embedded in Clinical Trials: How Do Health Technology Assessment Bodies Consider the Voice of Rare

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